How to raise down syndrome awareness

Every year, about 6,000 infants within the U.S. are born with Down syndrome, a genetic dysfunction by which an individual is born with one further chromosome. Down Syndrome additionally causes bodily and psychological variances, starting from delicate to extreme. Every October, throughout Down Syndrome Awareness Month, a number of Down Syndrome organizations raise awareness and help households.

With the proper help and early intervention providers, kids born with Down syndrome can go on to lead extremely fulfilling and profitable lives. That’s why these organizations exist: to give hope, help, and knowledge to dad and mom and households of these residing with Down syndrome.

Throughout Down Syndrome Awareness Month this October — or anytime all year long — please take into account donating to these Prime-Rated Down Syndrome organizations.

How to raise down syndrome awareness Picture Supply: Reece’s Rainbow Fb

Reece’s Rainbow

Mixed Locks, WI
All through the world, kids born with Down syndrome face larger charges of abandonment. Reece’s Rainbow works to give these kids a loving house, caring providers, and inclusive advocacy. This Down syndrome group isn’t an adoption company. As a substitute, it advocates for worldwide kids with Down syndrome and different developmental disabilities, serving to them discover loving and caring households within the U.S.

Reece’s Rainbow has helped greater than 2,100 kids over 14 years of service. By providing adoption grants for these keen to give a developmentally disabled youngster a loving house, Reece’s Rainbow is altering the lives of youngsters everywhere in the world.

We discovered three of our kids on Reece’s Rainbow! All three of our babes have particular wants, and all three have been destined to spend the remainder of their lives in institutes of their nation. We’re grateful for a company that works to discover particular wants kids and be their voice! –VeryPleased

How to raise down syndrome awareness

Buddy Cruise

Lithia, FL
Buddy Cruise is devoted to supporting households of youngsters with particular wants by selling awareness, offering advocacy, and permitting households to join with each other. The Buddy Cruise is an annual cruise for kids and adults with Down syndrome and their households. On this cruise, households can join with important assets, acquire invaluable info, and obtain help from friends and professionals. In the meantime, their children are having the time of their lives, constructing confidence, and studying vital life abilities.

However the group is greater than only a once-a-year sail. On land, they work carefully with kids, households, educators, and different members of the neighborhood to raise awareness about particular wants kids. By their efforts, Buddy Cruise hopes to create a extra understanding and sort world for all kids and a extra supportive atmosphere for households.

We’re so grateful for this group. Buddy Cruise allows us to loosen up and trip with others with disabilities and their households, whereas additionally attending seminars and getting a lot wanted help and knowledge. They achieve this a lot for folks with disabilities! –ConnieStives

LAMB Basis of North Carolina

Charlotte, NC
The LAMB Basis is devoted to supporting these with mental disabilities in North Carolina. The group is totally volunteer-driven, with greater than 93 % of all funds going instantly to applications that influence the folks locally.

Since its incorporation in 1999, the LAMB Basis has raised greater than $21 million to help amenities, education schemes, and different providers for the intellectually disabled and their households. This group lately earned “Gold Standing” with the North Carolina Particular Olympics, one of many greatest recipients of funding.

The LAMB Basis has supported my particular wants classroom for the previous a number of years by funding neighborhood involvement alternatives and buying wanted gadgets for the classroom. We’re actually grateful for all they do to help people with disabilities in our neighborhood. –Carrie

How to raise down syndrome awareness

Adam’s Camp

Centennial, CO
Adam’s Camp started in 1986 with just some households. Now, the group serves greater than 1,000 particular wants people and their households annually.

At Adam’s Camp, contributors have unimaginable experiences, partnering with volunteers and professionals to find out how to higher care for his or her particular wants family members. In the meantime, kids, youth, and younger adults residing with mental disabilities get to expertise the good open air, constructing confidence, discovering new mates, and taking part in specialised remedy applications.

Our 35-year-old son has Down syndrome and has been attending Adams Camp yearly for 22 years. It’s been instrumental to his social progress and his independence. He appears ahead to all of it yr and loves each minute within the lovely mountain setting. Debbers

Resilient Since 1978

How to raise down syndrome awareness

Let’s assist rejoice and raise awareness on World Down Syndrome Day, which is Sunday March 21st. It’s an vital day to assist educate the general public and help folks with Down Syndrome. So, let’s begin with some schooling. Are you aware the rationale for the Awareness date being 3-21? It’s as a result of it represents Trisomy 21. That’s medical time period for Down syndrome, which is the third replication of the 21st chromosome.

What’s Down Syndrome

Down syndrome is a genetic dysfunction that’s induced when irregular cell division leads to an additional full or partial copy of chromosome 21. It’s the commonest chromosomal situation and varies in severity amongst folks. Down Syndrome causes lifelong mental incapacity, developmental delays, and different medical abnormalities.

That is the data you get if you google what’s down syndrome. And though It’s vital to perceive the info which can be revealed. I imagine it’s much more vital to perceive a dad and mom perspective. What would a mother or father say should you requested, what do you assume folks really want to learn about Down Syndrome?

A mother’s perspective

I’m fortunate sufficient to know some wonderful mothers of children which have down syndrome. So, I requested them to share what they really need folks to learn about Down Syndrome. One mother instructed me, ” presume competence there could be a speech planning delay with Down syndrome but when we’re affected person and provides advantage of doubt, we will probably be amazed with the potential of individuals with Down syndrome.” She additionally stated that “folks with Down syndrome crave friendships and human connection, so don’t be afraid to embody mates with DS in birthday events, play dates and so forth. the weekends are very lonely”

One other mother shared, “that’s it’s not unhappy or dangerous, it’s completely different”. She stated “My finest recommendation to these folks on the market who need to get to know anybody with Down syndrome is to have persistence. While you sluggish down and have persistence, you’ll notice how alike you actually are.”

Each of those statements are highly effective and I hope everybody will take the time to take into consideration them. I do know a number of households with kids which have Down Syndrome and what I’ve realized from them is that folks with down syndrome are sort, humorous, caring, and succesful identical to you and me. Take into consideration this stuff and how one can assist folks with down syndrome. Possibly it’s to invite a baby to a birthday celebration or assist an grownup get a job. Or simply to take a minute to get to know them.

Now that you just perceive Down Syndrome, what’s subsequent?

Be sure that to educate your children at a younger age on how we’re all completely different. I lately learn a e book that was impressed by a younger girl with Down Syndrome. It was known as “You’re sufficient” and you may get it on Amazon. It was an excellent e book to assist children perceive that we’re all completely different and particular in our personal approach and that’s it’s vital that we embody one another in order that we are able to be taught extra about one another. I encourage you to inform your kids what my good friend stated which was that folks with Down Syndrome crave friendships and also you shouldn’t be afraid of them. Get to know somebody with Down Syndrome and ensure they’re included at school, play, actions, work alternatives, and so forth..

Rejoice and Raise Awareness on Down Syndrome Day

What are you able to do to assist rejoice folks with down syndrome on March 21st? You would do a random act of kindness in honor of an area good friend named Gus with Down Syndrome. His household began a motion years in the past that our complete neighborhood engages in and it’s so uplifting and enjoyable. Each March Gus’s household begins a marketing campaign to do random acts of kindness in honor of there son to raise awareness for World Down Syndrome Day. The act could possibly be something from serving to somebody put groceries of their trunk to paying for a espresso for the individual behind you in line. The probabilities are countless. So please selected your personal random act of kindness in honor of our good friend Gus . Try the fb web page Random Acts of Kindness for Gus and World Down Syndrome Day and put up your personal act of kindness!

It’s also possible to take part in “Rock your Socks” on 3/21. This can be a custom by which folks put on brightly coloured socks or mismatched socks in help of World Down Syndrome Day. The socks are symbolic as they seem like the form of the chromosomes. Be a part of on this yr and share on Social Media!

Advocating for the rights of individuals with Down syndrome

World Down Syndrome Day (WDSD), 21 March, is a world awareness day which has been formally noticed by the United Nations since 2012.

How to raise down syndrome awareness

What’s Down syndrome?

Down syndrome (or Trisomy 21) is a naturally occurring chromosomal association that has all the time been part of the human situation.

The very best folks to reply many questions on Down syndrome are folks with Down syndrome so over to them…

How to raise down syndrome awareness

Tales

One of the best ways to promote awareness of Down syndrome is for folks with Down syndrome, and their family members, to share their very own tales in their very own phrases.

How to raise down syndrome awareness How to raise down syndrome awarenessHow to raise down syndrome awareness

Mild up

Landmarks across the globe mild up for World Down Syndrome Day just like the world’s tallest constructing, the Burj Khalifa in Dabai.

How to raise down syndrome awareness

CONNECT for WDSD 2021

WDSD is a singular annual alternative for the worldwide Down syndrome neighborhood to join.

We wish you to CONNECT for WDSD 2021.

Get entangled

Yearly we encourage folks with Down syndrome, households, advocates, professionals and organisations to observe WDSD with your personal actions. Listed below are a couple of concepts to get you began.

How to raise down syndrome awareness How to raise down syndrome awarenessHow to raise down syndrome awareness

The #LotsOfSocks marketing campaign

The #LotsOfSocks marketing campaign exists to raise awareness of Down syndrome.

All you want to do is select some socks which can be going to get seen. Get your pals, class mates and colleagues to take part too.

Get the dialog began. We’ll do the remainder!

How to raise down syndrome awareness

Every year the voice of individuals with Down syndrome, and those that dwell and work with them, grows louder.

Take part with us to create a single world voice for advocating for the rights, inclusion and nicely being of individuals with Down syndrome on 21 March.

An estimated 50,000 folks dwell with Down syndrome in Germany, and plenty of of them really feel marginalized of their on a regular basis lives. Now a well-known German TV host is working to raise awareness for them.

How to raise down syndrome awareness

Brandenburgs Bildungsministerin besucht Schule

German TV host Kai Pflaume is on a mission – he needs to raise awareness for folks with trisomy 21, or Down syndrome. In a brand new four-part TV collection to be broadcast in June on Germany’s fundamental community ARD, he visits folks residing with Down syndrome and gives perception into their on a regular basis lives. Known as “Present Me Your World,” the mission goals to present how folks with Down syndrome can dwell very regular lives.

Glad in their very own world

Down syndrome is a genetic dysfunction brought on by the presence of all or a part of a 3rd copy of chromosome 21, therefore the identify trisomy 21. For the reason that energy of this incapacity can fluctuate, many individuals with Down syndrome dwell utterly regular lives with their households, whereas others want extra assist.

How to raise down syndrome awareness

Kai Pflaume’s new TV present goals to raise awareness of individuals residing with Down syndrome

Help is offered for them and their relations by the German Down Syndrome Community, whose chairman is Heinz Joachim Schmitz. He typically notices how folks with out a incapacity react after they meet somebody with trisomy 21. “At first, they’re somewhat afraid,” he stated. “They take two steps again, then three steps ahead – as soon as they’ve made contact with them.”

That is as a result of folks with Down syndrome are sometimes noticeably cheerful, with fewer hang-ups than others. “They’ve their very own world, and are settled and blissful inside it,” stated Schmitz, who thinks it is a disgrace that so many have such a stand-offish preliminary response. “Individuals with Down syndrome belong to our society, and shouldn’t be marginalized.”

Narrower consideration span

André Zimpel is an educationalist and neuropsychologist at present main a examine into the lives of 1,000 folks with Down syndrome. He’s particularly concerned about how they be taught, and what they be taught finest. What’s already clear is that folks with trisomy 21 have a narrower consideration span than others. “This altered consideration capability is not only a weak spot, it is also a energy,” stated Zimpel. “However particular colleges typically cannot help it, as a result of folks with trisomy 21 are extra depending on abstraction. That is why lots of them can already be taught to learn and write on the age of two or three.”

He would additionally like to see Down syndrome take pleasure in extra consideration in society – very similar to autism has in the intervening time. However sadly, says Zimpel, we dwell in a society with an “intelligence cult,” the place there may be nearly nothing worse than being thought of “silly.” “In an atmosphere like this, there may be a number of disdain for folks with trisomy 21, as a result of they’re assumed to don’t have any intelligence, which isn’t truly true.”

How to raise down syndrome awareness

Schmitz is appalled that the pre-natal check for Down syndrome was made authorized

For a very long time now, Germany has had so-called “inclusion colleges,” the place kids with and with out disabilities be taught collectively. This not solely advantages kids with disabilities – it really works the opposite approach too. “It’s particularly good for kids with out trisomy 21, as a result of it offers them a chance to assist others,” says Zimpel. “And in neuropsychology we have proved that serving to folks makes you simply as blissful as chocolate and profitable cash.”

Controversial blood assessments

And but, fewer and fewer kids with trisomy 21 are born in Germany. That is primarily down to pre-natal diagnostics, the medical examination of unborn kids. Docs are studying increasingly more about embryos – and they’re doing so earlier and earlier in being pregnant. Blood assessments can now diagnose Down syndrome very early. And when it is discovered, it is estimated that round 90 % of potential dad and mom resolve to abort the being pregnant.

This so-called Prenatest has been authorized in Germany since 2012, however it stays ethically contraversial. Critics say the check doesn’t serve any medical or therapeutic objective – since Down syndrome is incurable – however is just genetic choice. Schmitz is appalled that the check was made authorized: “I feel this check is totally unsuitable as a result of I worry that folks with Down syndrome will die out.”

Schmitz welcomes the truth that a well-known face like Kai Pflaume is placing the highlight on Down syndrome, since a number of his personal work is about educating the general public and inspiring better acceptance of individuals with Down syndrome. He says solely individuals who notice that Down syndrome isn’t an sickness – and that folks with this incapacity will not be extra silly than others, solely completely different – are ready to strategy them with an open thoughts and assist them take their place in society.

DW recommends

Down’s syndrome check causes moral dilemma

Up to now it was known as mongolism, right this moment it’s referred to as Down’s syndrome. A brand new blood check might help detect the genetic defect inside unborn infants – inflicting an moral dilemma. (06.07.2012)

Name for extra facilities to enhance childbirth

Specialists in prenatal and perinatal care are calling for extra specialised clinics for high-risk pregnancies and newborns. DW’s Nicole Goebel went to a specialists’ convention for a take a look at the traits and newest remedies. (17.05.2012)

Disabled performers rejoice 15 years of Circus Sonnenstich

On stilts, on the trapeze and with hula-hoops: Younger folks with Down’s syndrome may be grandiose artists. Berlin’s Circus Sonnenstich has been proving that for 15 years. (14.05.2012)

Advocating for the rights of individuals with Down syndrome

World Down Syndrome Day (WDSD), 21 March, is a world awareness day which has been formally noticed by the United Nations since 2012.

How to raise down syndrome awareness

What’s Down syndrome?

Down syndrome (or Trisomy 21) is a naturally occurring chromosomal association that has all the time been part of the human situation.

The very best folks to reply many questions on Down syndrome are folks with Down syndrome so over to them…

How to raise down syndrome awareness

Tales

One of the best ways to promote awareness of Down syndrome is for folks with Down syndrome, and their family members, to share their very own tales in their very own phrases.

How to raise down syndrome awareness How to raise down syndrome awarenessHow to raise down syndrome awareness

Mild up

Landmarks across the globe mild up for World Down Syndrome Day just like the world’s tallest constructing, the Burj Khalifa in Dabai.

How to raise down syndrome awareness

CONNECT for WDSD 2021

WDSD is a singular annual alternative for the worldwide Down syndrome neighborhood to join.

We wish you to CONNECT for WDSD 2021.

Get entangled

Yearly we encourage folks with Down syndrome, households, advocates, professionals and organisations to observe WDSD with your personal actions. Listed below are a couple of concepts to get you began.

How to raise down syndrome awareness How to raise down syndrome awarenessHow to raise down syndrome awareness

The #LotsOfSocks marketing campaign

The #LotsOfSocks marketing campaign exists to raise awareness of Down syndrome.

All you want to do is select some socks which can be going to get seen. Get your pals, class mates and colleagues to take part too.

Get the dialog began. We’ll do the remainder!

How to raise down syndrome awareness

Every year the voice of individuals with Down syndrome, and those that dwell and work with them, grows louder.

Take part with us to create a single world voice for advocating for the rights, inclusion and nicely being of individuals with Down syndrome on 21 March.

Pricey DSAW Household,

Glad March!! March is one in all my favourite months of the yr as a result of March 21st is World Down Syndrome Day. Whereas we rejoice the gorgeous reward of Down syndrome every single day, March 21st is put aside yearly as a global vacation – the day the remainder of the world celebrates with us. This yr, we’re making this celebration BIG, and we’re celebrating all month lengthy.

This month is all about awareness – elevating awareness and acceptance of our wonderful mates with Down syndrome. We all know how unimaginable they’re, now let’s shout it to the world!

We have now some enjoyable concepts and simple methods you could raise awareness this month:

How to raise down syndrome awareness

  1. Raise awareness all over the place, every single day!
    1. Change your cowl photograph to educate your family and friends about World Down Syndrome Day and the way we’re #morealikethandifferent. Click on right here to obtain the photograph!
    2. Print out these Down Syndrome awareness playing cards to hand out in school, work, or native companies. That is a straightforward approach to unfold awareness wherever you go! Click on right here to obtain the printable playing cards.
    3. Share our particular World Down Syndrome Day photograph that we’ll put up on 3-21. Keep tuned!
  2. Be a part of us in rockin’ your loopy socks on March 21st! Loopy socks have change into an emblem of World Down Syndrome Day – everybody is exclusive and delightful. Use the hashtag #DSAWCrazySocks in your posts for an opportunity to be featured on our web page!
  3. Raise cash for DSAW’s Statewide Guardian’s First Name Program with a Dimes for Down Syndrome marketing campaign! Click on right here to obtain our printable label and tape it to a espresso can/different container. Place the containers at native companies, your youngster’s classroom, or your workplace. The group that raises probably the most cash will obtain a pizza or donut occasion delivered by our Self-Advocates with Down syndrome. Ship in your change, or begin a fundraiser on-line (click on right here to go to the Dimes for Down Syndrome web site).
  4. Discover a DSAW World Down Syndrome Celebration close to you!

Not solely are we celebrating World Down Syndrome Day this month, however we’re additionally launching the DSAW Statewide Guardian’s First Name Program by sending supplies to greater than 400 medical professionals in Wisconsin, launching billboard campaigns, and unveiling our new DSAW Guardian’s First Name Journal.

While you raise awareness for Down syndrome in your local people, you aren’t solely elevating awareness on your youngster, neighbor, or sibling… however you’re elevating awareness for people with Down syndrome who aren’t but born.

The termination charge for fetuses with Down syndrome remains to be nicely over 80%. By DSAW’s awareness campaigns and the Guardian’s First Name program, YOU may be an integral a part of reaching expectant dad and mom who could sooner or later face a horrible resolution. expectant dad and mom who could look again in your work, your pleasure, your hope… and resolve that this life is definitely very lovely. YOU could make that distinction for households and people with Down syndrome in Wisconsin.

So be part of us. Raise your voices for Down syndrome! Change your cowl photograph, rock your loopy socks, and take part in Dimes for Down Syndrome. As a result of on the finish of the day, we’re #morealikethandifferent.

How to raise down syndrome awareness

When you have a baby or know a person with Down Syndrome, you’re aware of their distinctive traits. Whereas they do develop extra slowly than neurotypical kids, they nonetheless are sometimes ready to attain developmental milestones.

It’s fascinating to know that researchers are starting to perceive that the skills of children with Down Syndrome are far better than beforehand believed. After they obtain the appropriate interventions and therapies, their potential may be unlocked and additional developed.

One of many interventions that has proven to be very useful within the lives of these with Down Syndrome is the Tomatis listening program. This strategy gives very important auditory and cognitive stimulation. And that, in flip, helps enhance sensory processing talents.

Sensory Processing and Down Syndrome

Sensory processing abilities are sometimes, if not all the time, one of many fundamental struggles of people with Down Syndrome. Sight, sound, contact, and style are vital components of sensory processing. It additionally consists of sensorimotor management and proprioception awareness.

Muscle Management

Poor posture and weak muscle-tonus management are sometimes a component of Down Syndrome. It is sensible that these components can hinder sensory processing and expression. Importantly, the Tomatis methodology additionally works by stimulating the precise physiology of the ear. Some researchers have discovered that this methodology helps with speech and jaw/mouth management.

Amazingly, by exposing the internal ear to sound stimulation, the muscle tissue of the internal ear truly strengthen and change into more proficient. When carried out correctly, this carries over to the facial muscle tissue which can be used for speech and expression.

As Down Syndrome people be taught to pay attention (not simply hear), they’re taking vital steps towards enhancing their speech abilities as nicely.

Normal Sensory Processing

How to raise down syndrome awareness

One other frequent attribute of these with Down Syndrome is that they course of info extra slowly. As a result of their mind takes longer to put items of sensory enter collectively, they could miss key components of knowledge. Likewise, then, it’s more durable for them to reply totally to a stimulus after components of it have “been misplaced,” so to communicate, alongside the neural processing pathway.

Basically, these people wrestle to combine the exterior stimuli that they obtain. They’re typically hyporesponsive, or under-responsive, to exterior stimuli.

As a result of the auditory processing system is so intricately linked with the opposite senses, listening applications provide an extremely efficient therapy possibility. The Tomatis methodology stimulates the auditory system whereas additionally incorporating small vibrations to the cranium. The physique senses these vibrations earlier than it hears the sound. They assist create a holistic enchancment in sensory processing and readily handle gaps in cognitive growth.

Normal Advantages of the Tomatis Methodology

The Tomatis Methodology is a painless, non-invasive remedy that’s confirmed to practice and retrain the mind’s talents. And it presents many advantages for all kids throughout the cognitive span. Exposing kids to music, rhythm, tone, and timbre at an early age can increase their sensory and speech abilities. Plus, the Tomatis strategy additionally helps people improve their focus, focus, and efficiency.

These similar ideas are relevant to these with Down Syndrome. (You possibly can learn way more about these processes in different articles on my website.)

Working with Me

Utilizing the Tomatis methodology to assist enhance the skills of youngsters with Down Syndrome and different disabilities is one in all my passions. Through the years, I’ve seen how highly effective this strategy is in serving to kids strengthen their cognitive abilities. It additionally helps increase their developmental progress. For extra details about sensory processing please comply with the hyperlink: https://www.sacarin.com/sensory-processing-disorder-treatment/

Thorough evaluations are all the time a part of the therapy plan. I work carefully with different specialists locally as nicely, since serving to these with Down Syndrome requires a multi-pronged strategy. Seeing how kids thrive and develop is the very best a part of my job!

If you want to know extra about how the Tomatis Methodology might help your youngster or members of the family, please attain out to my workplace.

What’s World Down Syndrome Day ?

World Down Syndrome Day (WDSD) , 21 March, is a world awareness day which has been formally noticed by the United Nations since 2012.

The date for WDSD being the 21st day of the third month, was chosen to signify the individuality of the triplication (trisomy) of the 21st chromosome which causes Down syndrome.

Historical past of WDSD

WDSD was first noticed in 2006

Down Syndrome Affiliation Singapore launched and hosted the WDSD web site from 2006-2010, on behalf of DSi, for world actions to be recorded.

Marketing campaign to generate worldwide help 

The Brazilian Federation of Associations of Down Syndrome labored with Down Syndrome Worldwide and its members to launch an intensive marketing campaign to generate worldwide help.

Decision adopted by consensus

Following the joint work of Brazil and Poland, the decision was adopted by consensus through the plenary assembly of the Third Committee of the United Nations Normal Meeting on Thursday 10 November 2011.

Marketing campaign for co-sponsors

Down syndrome teams and associations around the globe campaigned for his or her governments to co-sponsor the decision. The decision was finally co-sponsored by 78 UN Member States.

Worldwide petition

As well as, DSi launched a global petition for the adoption of World Down Syndrome Day by the UN. This acquired greater than 12,000 signatures in a 2 week interval and was offered to the Chair of the Third Committee.

United Nations decision

On 19 December 2011, the United Nations Normal Meeting declared 21 March as World Down Syndrome Day (A/RES/66/149).

It’s a date!

The Normal Meeting determined, with impact from 2012, to observe World Down Syndrome Day on 21 March annually, and invitations all Member States, related organizations of the United Nations system and different worldwide organizations, in addition to civil society, together with non-governmental organizations and the non-public sector, to observe World Down Syndrome Day in an acceptable method, so as to raise public awareness of Down syndrome.

DSi would really like to thank everybody who supported this marketing campaign, with explicit thanks to the Authorities of Brazil, the Brazilian Federation of Associations of Down Syndrome, all of our member organisations who appealed to their governments for help, and to everybody who signed our worldwide petition.

Every year the voice of individuals with Down syndrome, and those that dwell and work with them, grows louder.

Take part with us to create a single world voice for advocating for the rights, inclusion and nicely being of individuals with Down syndrome on 21 March.